Wednesday, October 10, 2007

Throwing my own little pity party. Want to come?

L. was diagnosed with a severe allergy to cow milk 19 months ago. Since then, we've gone on a strict dairy elimination diet, and we've done quite well. Her last hives outbreak was a year ago (when I forgot to wipe down a restaurant table) and that one was pretty minor.

1 year ago, she had a follow-up RAST and skin test. The skin test came back negative, but the RAST showed her levels were unchanged. We continued the dairy elimination diet, and I just KNEW things were better this year. Her RAST test results looked good (from 2 to 1 for milk), so we were all set to do a food challenge yesterday. Right before the challenge, her allergist did one last skin test, and she failed miserably. Within 60 seconds of him applying the allergen, she was itching and developed 10 mm welt where he had put the whole milk.

We'll try again in another year... I had dreams of taking her to the fair and letting her have all the 'goodies', eating birthday cake and ice cream, enjoying my mother's pumpkin pie at T-giving, being able to go out to eat as a family, etc. Instead, it's another year of remembering to take epi-pens and wipes and special snacks and worrying about substitutes in L.'s daycare class...

I'm about to enter my 3rd trimester, so I'll be starting my dairy elimination diet soon. I hate soy flavors and cannot bring myself to drink soy milk. I guess I'll just have to suck it up... The allergist also recommended I avoid peanut and tree nuts since they are so allergenic. *sigh* I know it could be worse, and my heart breaks for the parents whose kids are allergic to unknown and multiple foods. But still, I'm having my little pity party today... I'll be better tomorrow.



mayberry said...

It's hard--I would be throwing a pity party too! The vigilance must be very tiring.

Anonymous said...

I wish I could relate to your frustrations, but I can't. I guess it's just one of those things you have to live with, as with any caregiver, there are challenges.


aimee / greeblemonkey said...

Bummer!!!! :(((

And P.S. I tagged you today!